Boy Whose Skin Fell Off
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zavvi.com
Product ID:
45174628
Description:
Jonny Kennedy is a man with a lot to do. He's got just four months to move home, befriendNell McAndrew, fly a plane, visit Downing Street – and plan his own funeral. 36-year-old Jonny is an extraordinary man with a terrible condition - Dystrophic Epidermolysis Bullosa (EB) - which means his skin literally falls off at the slightest touch, leaving his body covered in agonising sores and leading to a final fight against skin cancer. In 2003, Jonny decided to work with filmmaker Patrick Collerton to document